Good Afternoon, Everyone! I hope you're enjoying your day. I have been enjoying the time with my family and now spending some one on one time with my son. We have been working on a project together that he'd like to get started in the building.  

Yesterday was a day of many appointments with our son. We had to first go to the Children's Hospital for an ultrasound then to the Urologist, Dr. Mason for the reading of the ultrasound. We had discovered over a year ago now a calcification in our son's testicle. He had been experiencing some testicular pain. We found the calcification; at first as all parents do we worried about our son. What are our options? What is our next step?? Who do we see from here?? What is the plan of care?? We then paused after the running of the fast forward button of our minds.  We went to the throne. We went to God in prayer; we sought Him in our next steps. We knew and know He is the Great Physician, the Great Healer.  We trusted Him with this and prayed that in His Will, His timing that this calcification is removed. God has His plans, His ways; we have to trust the way He leads in our circumstances. 

The ultrasound went smoothly, two technicians came in and took pictures as one of the techs was just learning what is expected and being trained. I was fine with this because I was able to be there to see the photographs that they were taking. Meanwhile, our son slept through his entire ultrasound. Yes, he was that relaxed. We then walked across to the urologist's office. We arrived for our appointment and discussed the results with Dr. Mason. He assured us that everything looked good. The calcification was still there but had not changed at all in size or shape. He also told us that unless there was an issue he would see us in two years!! We praise God for this!!! 

We then left for the Diabetes Center to get our son's DEXA scan for his bones. We need to see where he stands with the density of his bones to determine if infusions are again needed or if we can continue on with our break from having to go to the Children's Cancer Center.  I was in the room while they performed the DEXA and what I saw of the previous scan to this one his bones look much better. I will know better after his appointment with the Nephrologist where we stand far as infusions. 

I must say again that I am seeing great things with the Vitamin D-3 that we are taking. Our levels have improved instead of decreasing. I know we are in our Lord's hands. I am so blessed that we are Children of God as it says in I John 3:1-2 "Behold what manner of love the Father has bestowed on us, that we should be called children of God! Therefore the world does not know us, because it did not know Him. Beloved, now we are children of God; and it has not yet been revealed what we shall be, but we know that when He is revealed, we shall be like Him, for we shall see Him as He is."

I will update this post as soon as we have the results of the levels and his bone density. I am not worried about this result. I know God has him in His care. 

Have a great day Moms!!

Good Evening! Hope you all have had a wonderful day.  I titled this "Grateful for my Family" because I am. I know simple right, but it goes so much deeper than that.  I recently went through an injury that had me laid up these last three months; it was a difficult journey. I not long into it started sensing things with my husband. I didn't know what to think. I would mention it to one of the beautiful ladies that came out to help me. They really touched my life, my husband's life, and our son's life in so many ways, on so many levels. I said I didn't know what to think about what I was sensing, feeling from my husband. I must say that God moved in such a way with him to touch me to my core. I say that because he made himself so vulnerable. I mean I could have hurt him so big, I mean big if I was that kind of woman. Thankful that God made me not that kind of woman, but a woman of great patience. I listened to his words that he shared with me, he said he had to disconnect himself from me, separate himself from what is going on around him, separate himself from watching me struggle to walk. He said that it crushed him, it hurt him deeply to see me that way. I was humbled by his words because they spoke to me so deeply. I cried my heart out to him even through my pain. I told him I loved him so much already, but I love him even more. We are even closer now that I am starting to come around from my injury.

I am not going to end the post here just quite yet. I must also include our son. I am so thankful for him. God really had me wait a long time for him. God knew the desire of my heart; that I wanted a child. God knew also that in 6th grade when we were asked to write a paper about what we thought our future families would be when we grew up and were married. I wrote in there that I wanted children, but I also asked God for a special needs child that I could love and nurture the way He would have me to do. I prayed that He'd give me the heart of a Mother for a special needs child. I prayed and watched, heard others and friends having babies around me. I remember saying "that should have been me;" I had shed so many tears in this time of waiting on God's timing. His wonderful timing that we are sometimes too quick to try to speed things up, but God still makes us wait. The time for me was fifteen years. I know that may seem like a super long time, but I am glad that God had me wait that long. He was making me be the mother I am today. Our son is such a wonderful young man. He is my special needs child that I prayed for and also shares the same bone disease with me; Osteogenesis Imperfecta. This is a speck in our lives it's not a part of us. You say, yes, yes it is. Hear me out, I said a speck in our lives because that's what it is. It's not a "part" of us meaning that when we meet someone we don't walk up and introduce ourselves and add on there "I have Osteogenesis,......"  We just don't do that and I have taught him that it is a piece of him that it doesn't identify him. Yes, his friends and others know he has it because they've been there with us through the infusions that we have to receive. I have received so many compliments from teachers, friends, family, and others about him. In fact, one teacher bragged on him because of his stepping up to ask if he could do his class project on his bone disease. She thought this was very big of him because he could have been ridiculed by classmates, put down, bullied, and others could be nice and accepting. I have to say that all his classmates have accepted him and they treat him like their other friends and will brag on him to me as well. She said he was very informed about the disease. He wasn't afraid to share about it; he explained about the anger that we deal with because of the continuous breaks with the bones. He even included in his project about my diagnosis after his. Mine being diagnosed as an adult; the teacher said you could hear a pin drop with the class. They waited eagerly for his next word. Then he told them how many fractures I've had. The sound they made, made the teacher laugh. He then told them how when he broke his elbow that after he fell and said "OW! My ARM!........Is my camera ok?" We got a good laugh when it happened. I told him we needed to get his arm fixed and we will find the camera. Our son is such a blessing. He and I have much time together and we enjoy one another. Yes, there are times when he may not be on his best behavior as is expected with children. I have a phrase that now I cannot finish without him interrupting. I have told him when he does he must tell me what it is. We then discuss his behavior and he then writes scripture out based on the behavior. I then have him write a prayer to God also about his behavior.  The phrase that I use with him during these times is the following, "When you choose the behavior, you choose the consequences!" I haven't had to use it a lot, but it really hit deep with him the first time I used it that it didn't need to be used much.  I now can get "When.....(that's it) and it's "Mama, no, please, please don't finish it. I would reply, "Ok, I need you to tell me what my phrase is and what it means." Well, I have gone on for a bit. Go spend some time with your families. Thanks for stopping, feel free to leave a comment. 

Have a great day Moms!!